End of Life Care
End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities
David T. Helm and Sandra L. Friedman AAIDD (2010)
While care for people with developmental disabilities has undergone revolutionary improvements, it still isn’t unusual for some to wonder why people with developmental disabilities should consider aggressive medical management in specific situations. Further, palliative care for people with intellectual disability is riddled with medical, ethical, and legal complexities for which most professionals receive little training.
End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities presents a comprehensive framework under which professionals and families can make decisions that are thoughtful, ethical, and most importantly, respect the wishes of people with disabilities.